To report the effort of the European Reference Network for Rare and Complex CONnective tissue and musculoskeletal diseases NETwork working group on Ehlers-Danlos syndromes (EDS) and related disorders to assess current available clinical practice guidelines (CPGs) specifically addressed to EDS, in order to identify potential clinician and patient unmet needs.

Ehlers-Danlos syndromes: state of the art on clinical practice guidelines

Scirè, Carlo Alberto;
2018

Abstract

To report the effort of the European Reference Network for Rare and Complex CONnective tissue and musculoskeletal diseases NETwork working group on Ehlers-Danlos syndromes (EDS) and related disorders to assess current available clinical practice guidelines (CPGs) specifically addressed to EDS, in order to identify potential clinician and patient unmet needs.
2018
Sulli, Alberto; Talarico, Rosaria; Scirè, Carlo Alberto; Avcin, Tadej; Castori, Marco; Ferraris, Alessandro; Frank, Charissa; Grunert, Jürgen; Paolino, Sabrina; Bombardieri, Stefano; Schneider, Matthias; Smith, Vanessa; Cutolo, Maurizio; Mosca, Marta; Malfait, Fransiska
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Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/11392/2401063
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