To report the effort of the European Reference Network for Rare and Complex CONnective tissue and musculoskeletal diseases NETwork working group on Ehlers-Danlos syndromes (EDS) and related disorders to assess current available clinical practice guidelines (CPGs) specifically addressed to EDS, in order to identify potential clinician and patient unmet needs.

Ehlers-Danlos syndromes: state of the art on clinical practice guidelines

Scirè, Carlo Alberto;
2018

Abstract

To report the effort of the European Reference Network for Rare and Complex CONnective tissue and musculoskeletal diseases NETwork working group on Ehlers-Danlos syndromes (EDS) and related disorders to assess current available clinical practice guidelines (CPGs) specifically addressed to EDS, in order to identify potential clinician and patient unmet needs.
Sulli, Alberto; Talarico, Rosaria; Scirè, Carlo Alberto; Avcin, Tadej; Castori, Marco; Ferraris, Alessandro; Frank, Charissa; Grunert, Jürgen; Paolino, Sabrina; Bombardieri, Stefano; Schneider, Matthias; Smith, Vanessa; Cutolo, Maurizio; Mosca, Marta; Malfait, Fransiska
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Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/11392/2401063
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